• to raise funds to support ground-breaking research into SDS
• to disseminate current medical information regarding SDS
• to heighten awareness of SDS in the broader medical community to allow earlier diagnosis and treatment
• to develop a network of contacts and resources to assist people with SDS

• we publish regular newsletters updating the membership on our activities and informing members of any recent medical advances
• in collaboration with medical advisors, we have developed a series of publications regarding SDS; we are continuing to develop and update our publications (see link to Clinical Information)
• as a registered charity, we have raised money from corporate donors and individual donors to support medical research, member services and information dissemination (see link to Fundraising Events)
• we fund research into various aspects of SDS; a formal process is in place for scientific review of research applications (see link to Research Grants)
• we hold both social and fund raising events attended by SDS families, corporate donors, physicians and researchers; some of these events raise significant funds and all of these events foster networking, information sharing and "partnership" among all of those seeking to better the lives of people affected by SDS
• over 90% of funds raised to date have been donated to medical research; the remainder has supported member services, publications and operating costs

Our Membership
(by application):

• general (voting) members: any adult Canadian Citizen with SDS or parent or legal guardian of an individual with SDS
• associate (non-voting) members: any Canadian citizen who wishes to express their support to families with SDS

The first SDS-Canada Picnic in Oakville in 1998

The SDS Canada Board of Directors (2007)

President: Heather Norton
Fundraising: Mike Smyth
Secretary: Greg Symons
Research: Alex Speers, PhD
Legal: Susan Mann
Karen Campbell, PhD
Susan Salvati