|
The David Smyth Memorial Golf Tournament in support of SDS Canada Tuesday May 31 Carlisle Golf & Country Club This is is a very special year for our annual golf tournament as we pay tribute to the young man who was the reason SDS Canada was formed in 1997. David passed away on September 3, 2010 at the age of 20 aer an intense summer struggling against the rapid advance of acute myelogenous leukemia resulting from his SDS vulnerability. For more inmation, please see the invitation document. To register please fill out the registration form then fax or email it to us at SDS. To become a sponsor, please see the Sponsorship form. Camp Quality Accepts SDS Kids Our kids (all SDS Kids) are included as kids that can go to Camp Quality (Each of our seven camps across Canada and our year-round programs are volunteer-run, community-funded and are available at absolutely no cost. Our year-round program includes family weekends, reunions and fun days for the whole family. Our signature week-long camping program provides a wonderfully unique opportunity for children with cancer to put their illness behind them and concentrate on having fun! Each camper is matched with a trained adult volunteer and medical staff is on-site. ) And I got permission to link to their website which has application forms to fill out and send in. http://www.campquality.com/about_campquality.html What is Shwachman-Diamond Syndrome? Shwachman-Diamond Syndrome (SDS) is a rare genetic disorder that occurs in approximately one in 50,000 births. SDS affects many organs in the body and the symptoms may vary from individual to individual. The primary features of SDS include: bone marrow problems (leading to inadequate production of some types of white blood cells), a defect in the pancreas (leading to difficulties in digesting food), skeletal abnormalities, and short stature. Other, secondary, features may affect some but not all people with SDS. People with SDS are at risk for serious, sometimes fatal, complications such as severe infections, acute myelogenous leukemia and bone marrow failure. |
|
What is Shwachman-Diamond Syndrome Canada? SDS-Canada is a registered Canadian charity (Registered Charity #86880-8197 RR001) dedicated to raising and awarding funds for much needed research, disseminating information and improving the quality of life for children and adults with SDS. |
|
The SDS Canada Board of Directors & Officers (2009) President: Heather Norton |
|
Shwachman-Diamond Syndrome
Canada |